Myotonic Dystrophy Clinic

The Myotonic Dystrophy Clinic is a multidisciplinary care clinic with an exceptional level of care for patients with myotonic dystrophy (DM), the most common form of adult-onset muscular dystrophy. This multi-systemic disorder causes progressive muscle problems, including muscle weakness, trouble relaxing a muscle, and muscle wasting. 

 

Our clinic offers an exceptional level of care for patients with myotonic dystrophy and other neurological disorders. We help to improve patient survival rates and quality of life. Our physicians offer clinical and translational research expertise, and are among the finest in the nation in their fields.

 

Our clinic has a representative from the Muscular Dystrophy Association (MDA) and is staffed by an experts in the following fields:

 

  • Cardiology
  • Diet and nutrition 
  • Neurology
  • Occupational therapy
  • Physical therapy
  • Respiratory therapy
  • Speech pathology
  • Social services

The Myotonic Dystrophy Clinic is held four times a year in February, May, August and November. Our clinic coordinators schedule consultations or testing with doctors, therapists and social services in one visit. Our local MDA representative is on hand to address equipment needs as well as social and financial issues.

 

The Clinic sees patients by physician referral only. Appointments to the clinic can be made only after a physician has confirmed your diagnosis. 

 

This clinic is sponsored by the Muscular Dystrophy Association.

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