Myotonic Dystrophy Compilation of Clinical Findings

Investigator: Ericka Greene, MD

Study Coordinator: Sharon Halton

Status: Open Not Enrolling

ClinicalTrials.gov Number: N/A

Phone: 713.441.3420

Protocol Number: Pro00018337

Description

The purpose of this protocol is to make available clinical findings, including blood pressure, pulmonary function tests, cardiac function tests, clinical evaluations, cognitive evaluations, performance tests, medications, routine blood work evaluations, weight, and progression of disease to allow Houston Methodist Neurological Institute researchers access to a large pool of patient findings. Since Myotonic Dystrophy is a rare disease, such experiments must rely upon previously banked clinical findings rather than immediately available subjects. Information will be collected from patients with DM who have signed an Informed Consent for Research Review.
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