Clinical Trials

    Showing 1 - 1 of 1 Hemoglobinopathies

    The International PNH Interest Group PNH Registry

    Status: Open Not Enrolling

    Investigator: Lawrence Rice

    Study Coordinator: Melissa Whipple

    Phone: 713.441.3247

    Paroxysmal nocturnal hemoglobinuria (PNH) is a rare condition. Prospective longitudinal data in large populations are limited. The aim of this International PNH Interest Group (IPIG) registry is to develop an international database to prospectivel... Read more >