Showing 1 - 1 of 1 Hemoglobinopathies
The International PNH Interest Group PNH Registry

Status: Open Not Enrolling

Investigator: Lawrence Rice

Study Coordinator: Melissa Whipple

Phone: 713.441.3247

Paroxysmal nocturnal hemoglobinuria (PNH) is a rare condition. Prospective longitudinal data in large populations are limited. The aim of this International PNH Interest Group (IPIG) registry is to develop an international database to prospec ... Read more >